Tuesday, June 29, 2010

"You're happy?" "Yes! Can't you tell? I haven't threatened to hurt anyone in weeks!"

So I mentioned rage, earlier, right? I mentioned how it's much like a cornered beast that is almost impossible to control.

Well here's the thing, we all gotta find out how to bleed off bits of it so when we let it out to full it's teeth, no one's going to actually get hurt.

I do that through threats, and the occasionally brain-movie of some serious ass kicking.

For example: My boyfriend and I goof around a lot. I mean a serious ton. And when he's a brat I threaten to punch him, or something...and I'd never actually hurt him, but just saying it bleeds off a bit of the rage. It may only be a tiny drop that's gone, but it helps. So I joke, and threaten and visualize all the things I would do if I had things to attack that couldn't be hurt.

I don't want to be a bad person, I don't ever want to hurt someone. But I have.


One time, Mat and I got into a fight so bad that I lost control. The rage actually broke out, and I blacked out. In that time, I pushed him, bit him, tried to knee him in the balls, and tried to head butt him. Because I was that lost to the rage. When he told me about it a few days later I not only didn't remember my actions, but I was stuck by the actual similarities between me in that moment and an animal that's been cornered.

I'm not proud of that moment, and thankfully Mat didn't hold it against me for long. Because he realized that when I'm me and in control, I'm not a mean, or violent person. When the Borderline managed to break down my defenses and I lose control, I'm only responding in the actual natural instincts. He had been restraining me, and like a wild thing, I fought back with tooth and nail and screamed bloody murder at him.

It's so fucking terrifying. To have this wild thing trapped inside my skin, this thing that could, at any given time, break through all the carefully constructed defenses to break out into the real world and lash out at anyone who is unfortunate enough to be within range. I don't wanna live that way, but I don't have much of a choice.

So instead, in order to keep from being an actually violent person, I issue threats. Which enforce the idea that I *AM* violent. Which I don't like because I don't want to be that person.

It creates a horrible situation that I just have to deal with.

On the plus side, it does give people a good idea as to how stressed out I am. The happier and more relaxed I am, the less threats I issue. The more stressed out, upset, distressed or angry I am, the more times I suggest violence.

Thankfully, since my childhood, I've managed to gain an impressive iron hold on my temper. In the past 4 years (the time I've been dating Mat) I've properly lost my temper twice. I've been angry loads of times, sure. But thats just a fairly socially acceptable angry. But lost my temper, and really been a force of horrifying nature? 2 times in 4 years is pretty damn good, if I do say so myself. And I've never actually hurt someone since my childhood. (And when I say childhood, I mean before pre-double digits.)

And I do say so, by the way.

Because it's hard work to keep it in check. Someone calls me a name and I want to break their nose, they look at me like a sex object and I want to punch them in the throat, they managed to piss me off and the whole stabbing or choking thing seems pretty attractive.

And to keep that away from everyone, to manage to go through my days without actually acting on that rage is impressive.

But I'll never stop working on it, I will never not be working to the bone to tame that rage, to turn it into something else, to keep bleeding it off so that I can function like a normal person. So that I will never, ever hurt someone.

Sunday, June 27, 2010

Lost in the Looking Glass

(If I had a world of my own everything will be nonsense)
(Nothing will be what it is because everything will be what it isn't)

I invite you to a world where there is no such thing as time
And every creature lends themself to change your state of mind
And the girl that chased the rabbit drank the wine and took the pill
Has locked herself in limbo to see how it truly feels
To stand outside your virtue
No one can ever hurt you
Or so they say

Her name is Alice (Alice)
She crawls into the window
Through shapes and shadows
Alice (Alice)
And even though she is dreaming, she knows

Sometimes the curiosity can kill the soul but leave the pain
And every ounce of innocence is left inside the brain
And through the looking glass we see she's faithfully returned
But now off with her head I fear is everyones concern
You see theres no real ending
Its only the beginning
Come out and play

Her name is Alice (Alice)
She crawls into the window
Through shapes and shadows
Alice (Alice)
And even though shes dreaming
Shes unlocked the meaning for you
This kingdom could rid us her freedom and innocence
Has brought this whole thing down

Her name is Alice (Alice)
She crawls into the window
Through shapes and shadows
Alice (Alice)
And even though she is dreaming
Shes unlocked the meaning

Shes unlocked the meaning for you

(And contrary wise what it is it wouldn't be)
(And what it wouldn't be it would)
(You see)

-Her Name is Alice, by Shinedown.



Really read these lyrics. Just take a minute, re-read them, listen to the song if you can, and THINK on these lyrics.

Think about that world, where time means nothing, and it flows in strange ways, slipping through your fingers and dragging all at the same time. A world where everything, everyone seems to have been created just to complicate and confuse you. To feel like you're trapped in limbo, the pain that lingers.

When the chorus come on, and it talks about Alice crawling through shapes and shadows, I totally understand. Because that is a wonderfully poetic description of how it feels to shift from Ana to Ana to Ana to Ana. Even though I am me, I don't know who ME is and I shift and change.

I'm also horribly acquainted with the pain of a ruined soul, where it feels as though all that remains is the pain, that you've suffered a soul-death. And there isn't any end on the horizon, no hope of a better day, just the fear of an end, or sometimes, even the hope of an end.

Either way it's not a good place to be.


There are actually a lot of comparisons between Borderline Personality Disorder and Tinker Bell, and even Alice when she's lost in Wonderland, or the Looking Glass World.

Lemme explain.


Tinker Bell: In the original story she's so tiny that she's incapable of being more then one emotion. When she's good, she's wonderful. When she's bad, she's horrible. Because she can only be one, she is ALL of that single emotion at a time. I live like that too. When I'm forgiving, I could forgive the entire world of their faults. When I'm angry, I could destroy an entire country.

Alice: When Alice is lost in Wonderland, she doesn't know who she is anymore. And through a series of strange, confusing, and often distressing events she goes through a process of elimination to figure out who she isn't, eventually waking up and just being her.

Well, life as a Borderliner is living that process of elimination, sometimes we win the game and know who we are before we die, sometimes we don't.

Can you imagine? I mean sure, you see girls idolizing both Alice and Tinkerbell, but the characters they see are such a watered down version that we forget the original characters.

They were darker, more raw then the way Disney portrays them.

That's me. I am dark and raw and uncompleted. I am a creature of oddity, and emotion. It's a wild, untamed existence.

Often you'll see me make the comparisons in the future, so I figured I'd take a minute and explain it.

Friday, June 25, 2010

Sanctuary, my sanctuary

Do you ever wonder about that word? Sanctuary.

I realize that the original connotations are religious, but if you go down a few notches, it means a place of refuge.

They are few and far between for those of us who're chased by our demons. Because we're not safe in our own minds, we're not safe in our own skin. So where are we afford that oh so precious sanctuary?

In you.

Obviously it's different for everyone, and we can each have a couple places. For example: When I don't know what else to do, I read. When my grief is so intense that I can't make my mind accept the words, I'll watch Supernatural. No really.

But most of all, the one place I can turn to to allow me refuge, is you. Friends, family, random people who'll just sit and talk with me. Because they're so REAL. They're real when I am not. They're who they are no matter what, and I study it. I look to see how all the pieces fit together, so that I can be like that too.

So that one day I will be a real girl, with all my pieces bound together in one single entity. I want to draw in all the different Ana-things and make them into one person. One person who is everything and everyone she needs to me. An Ana who is a daughter, sister, friend, auntie de facto, girlfriend and herself all together. Instead of these shifts from one to another to another. Because sometimes when I'm one, I forget how to be anything else.

And I hate that. I wanna be able to be two, or three, four or all five all at once.

Sooner or later I'm going to have to be.

I mean someday I plan on having a wedding, a marriage, a family...And then all of my parts will have to come into play every single day.

It's why I spend so much time alone. Because switching back and forth between my different selves is a lot of work. And it's exhausting. And I get overwhelmed and freak out a little bit.

So I try so very hard to just be one at a time. And once I have that mastered I'm going to keep moving on, until one day all the different parts of me can exist together in the refuge of my own skin.

Because it's my dearest hope that someday, someday I will be all of me. A me that can live, love, laugh and just BE.

It's why I occasionally look at my phone like it's the spawn of a demon.

Because some days, I can't be anyone. And I just have to figure out that I exist at all.

Wednesday, June 23, 2010

Interlude: A moment of current crazy

What the ever living hell was I thinking, getting out of therapy?

I mean, before I moved out here I should have had Sarah find me a new shrink and just jumped from one doc to the next. Because me without therapy is turning out to be far more difficult then I could have possibly anticipated.

Don't get me wrong, I'm heartily impressed by the fact I haven't gone off the deep end since my therapy was terminated, but I've been on the edge more times then I care to recount.

Here's the thing: Therapy isn't just about getting you better, it's about keeping you better. It's all about keeping your skills sharp. So even if I was only going once a month, it has a safe feeling about it.

I've made good use of my close friends and my mom though. Calling all the time, ranting, raving, demanding to know if I'm behaving at all like a rational human being or not.

Words are insufficient...

I pass my days in solitude so very often, I go hours without uttering a word. And all that time where I'm on my own, where I am left to my own devices...It's the breeding ground for panic and despair. It's where anxiety grows and blossoms.

My mind is allowed to run wild, and come up with everything and anything it wants to.

Days have been spent pouring over my every minute failing, every mistake and wrong choice. Picking apart my entire life, personality, and psyche only to reach the same damn conclusion (which I'm told it utterly incorrect) of how horrible a human being I am.

Now, this isn't logical. I'm 100% aware of that. (I have this bizarre mix of using logic when it supports my absurd and wild self accusations, and coming up with things that are totally out of the realm of rationality when logic fails that...quirk.)

But then again neither is blaming someone for leaving when they have no intention of doing so...well, until I throw my crazy at them so hard they don't have much of a choice. In their shoes, if my boyfriend/girlfriend/friend/whomever-it-is-I'm-referring-to started pelting me with hail sized crazy, I'd probably need some distance too.

Look, I guess the point I'm trying to make here is that I'm so ready for someone to be there to smack me when I get out of line again. Hell, my mom's 2,000 miles away so she can only do so much to kick my ass into line. Sometimes what I need is a good old fashioned smack upside the back of the head to remind me to pull my head out of crazy-land and return to harbor in good ol' real-world.

I'm sure some people are highly offended about how I talk about Borderline Personality Disorder, and some people may take this as permission to joke and tease and play around with it.

Let me be crystal clear here: This is my life. This is my every moment of existence. Humor is how I survive when my own mind is trying to kill me. I have every right to address MY life, MY understanding, MY case of BPD with disdainful amusement and detached affection because I learned that if I don't embrace my own insanity, I'm doomed. I don't mind when my boyfriend addresses it the same way because, now, it's his life too. We share this morbid humor together because otherwise this would destroy us. We're foxhole buddies, so to speak.

But unless you have permission from someone, unless it is your own life, unless you have suffered through the deepest, darkest pits of hell along side that person, don't you ever dare make light of it. It is far from funny. Common decency demands that you make no jokes about homicide, war, genocide or any other form of destruction, so extend that decency to us. We are ravaged in the unseen corners of our minds by demons and monsters, violence and terror beyond imagination. Would you mock a prisoner of war, make light of torture, tease a survivor? If you would, then you don't deserve to call yourself human and I pity your pathetic existence. If this seems harsh, understand that I have been mocked, told I am weak, teased, and had 'light hearted, affectionate jokes' made by people who've never held me while I wept, stood by my side while I contemplated suicide, and stubbornly refused to leave my side while I suffered.

So, please, respect the realm of mental health issues, and please understand that this is how I make it through each day. And refrain of 'making light' of someone's brokenness, unless you've been given permission, or unless you're that steadfast companion.

Tuesday, June 22, 2010

If I pretend to be strong, will you see the flaws?

The Science of Borderline:
As understood by me.



This may seem a bit muddled, but I’ll start out with stolen words that’ll help me clarify.


The DSM-IV lists the criteria for Borderline Personality Disorder as follows:

Disturbed Identity:
1. Identity disturbance; self-image or sense of self is persistently and markedly disturbed, distorted or unstable.
2. Chronic feelings of emptiness.
3. Frantic efforts to avoid real or imagined abandonment.

Disturbed Mood:
4. Emotional instability due to a marked reactivity of mood. Intense depressed episodes, irrationality or anxiety usually lasting a few hours, rarely more then a few days.
5. A pattern of unstable and intense interpersonal relationships, characterized by alternating between extremes of idealization and devaluation.
6. Inappropriate, intense anger or lack of control of anger, e.g.
Frequent displays of temper.
Constant anger
Recurrent physical fights

Disturbed Perception:
7. Transient, stress-related paranoid ideations (feelings of persecution) or severe dissociative symptoms (discontinuity of experience)

Disturbed Behavior:
8. Impulsiveness in at least two areas that are potentially self-damaging:
Spending
Sex
Substance abuse
Reckless driving
Binge eating
9. Recurrent suicidal behavior, gestures, or threats
Self-mutilating behavior.


To try to explain these as one would if they came from a medical background is obviously impossible. But I can offer to you my own personal understanding of what it means to live within this very grim outline. A view from the eye of the storm, so to speak.
I’ll break it up into groups so you can take a breath in between.










Disturbed Identity:
To literally not know who you are. It's like being 5, almost. ‘Today I am Tinkerbell, tomorrow I shall be Alice, and then I will be someone new entirely.’ Its like that with everything, including trying to find an occupation. I went through 5 months of cosmetology school, only to withdraw, look into dance therapy and change my mind again. Now I’m thinking about looking into modeling for art classes, or maybe working at a sex shop. Socially its very much the same. Depending on the group of friends depends on who I am and what mores I adhere myself to.

Oh the fear of abandonment. The most eloquently put description of that fear was in the book "Stop walking on eggshells" by Paul Mason and Randi Kreger. "Imagine the terror that you would feel if you were a 7-year-old, lost and alone in the middle of Times Square in New York City. Your mom was there a second ago, holding your hand. Suddenly the crowd swept her away and you can't see her anymore. You look around frantically, trying to find her. Menacing strangers glare back at you.... This is how people with BPD feel nearly all the time.”

We’ll do anything to avoid that fear. Then it becomes ’I-Hate-You-Don’t-Leave-Me’. We’re so angry because we know you’re going to leave us, and we’re so desperate because we can’t stand the thought of you leaving. We’ll do anything to stop you. Threaten suicide to make you stay with us, even though part of us knows it’s only out of concern. We’ll change who we are on the surface, we’ll beg and plead, scream and yell. I myself have done things I never would have, if I weren’t driven by the fear. I’ve done drugs that I hate, I’ve said things I don’t mean, I’ve behaved in ways that made me sick, all because it looked like the only thing to keep me from feeling that pain of being abandoned. And even while we do this, we’ve already decided you’re going to leave, and so we withdraw, back into our marble prison, protecting ourselves from the pain we know is coming.

The thing of it is, though, we’re so afraid of the loss of people because it’s all the people in our lives who make up who we are. For me, I feel like I am who I surround myself with. If I lose someone, to circumstance, or death or whatever…I lose me. Suddenly I have no idea who I am anymore. I am my parents daughter, my brother‘s sister, my boyfriend‘s girlfriend, my friend‘s friend…And all of these Ana-selves need to exist for me to be stable. If I lose part of that, who do I become? If I’m not a daughter, what am I? If I’m not a sister, who am I? If these friends aren’t my friends, then what became of me? It’s a very tedious, terrifying way to live. If I am not a part of someone else, then I do not exist, I’m not real. I become a nobody, a nothing, an absent part of a picture. And that is a horrifying feeling. Even writing about it, and looking at some old journal entries of mine I feel that panic, the one that I know so well, creeping up my spine and spreading through my skin.

And I hate it. I hate being who I am. And I know, just like you, all you want is for it to stop. It’s like the worst ride ever that you can’t get off. I hate this up and down, left and right, never knowing who I am, what I want, what I need. I hate needing people so badly that without them I am reduced to something that only knows how to be in pain. I’m always asking myself, “Who am I anymore?” This body I live in, its not even mine. It’s a shell, because the real Ana is a lie…A mirage. A fake reality. It’s a lie, twisting, changing, shifting to be what you want it to be. I just want to be one person. And I want Ana to be Ana, to belong to me and not your. Not to be yours. Not hers. Not his. Not theirs. I just want to be my own person. I just want to be myself., and to know, without question that no matter what happens I will be me, and that can’t be changed by who is in my life, and who is not.

But we don’t quite get that, do we?

It all ties together in a neat little bow (only nothing about it is neat, it’s messy and violent and horrible and terrifying) when you look at it all together. I don’t know who I am, so I am who you make me. If you’re not there to make me who I am then I’m not there at all. I am empty. I am nothing

The saddest part of it all, though, is that so very often we create our own abandonment with the shifts in the relationships as well as the unavoidable underlying sense of self-hate. And then there is the emptiness.

I am going to try to explain the emptiness that we feel chronically. But how do I aptly describe that inner hollowness? If you've never felt it, then no words you read here will ever be adequate to give shape to that state of being. If you have felt it, then I have said more then enough already. But I will try, for those lucky enough to have no such knowledge.

Its like a gnawing black hole in the center of your soul, ragged edges aching bitterly. It is the feeling of dying slowly in your own skin. Decaying your soul until it is brittle and lifeless. The terror is unimaginable. Like being buried alive, totally deprived of all your senses. Severed from yourself, your body, your own life. The lines of your existence blurring into nothingness and you seep into the black hole, forever separate, caged...crushed. Gone. You writhe in unspeakable torment, your body wracked with each soul shaking sob that you needn’t even cry, because you can‘t. You try to cry, but you are trapped in the prison of your own emptiness. Your chest constricts and your heart feels squeezed painfully, as if at any moment you’ll suffer dire consequences and you’ll die a horrible death.

Only the death never comes. Nothing ever comes. Time means nothing as it stretches on into forever and there is no forward or backward, nothing to mark the time or let you know that you’ve felt differently, that you’re still something real. There is nothing. It’s like infinite space has consumed you, eaten you whole and as you’re trapped, trying to scream, in this cold, dark, painful hole you struggle to find something, anything that is different. Because the nothingness, this harrowing, hollowing out emptiness drives you to the utter brink of insanity. You become the true definition of lost.

I would compare it to being hopeless, but it’s beyond that. You don’t even know what hope is. To be hopeless, at least you can remember. You know that it exist… But in this emptiness, you’ve never felt anything like hope. It’s a nonsense word. It means nothing to you. The black hole that lives where your core used to be is sucking away all the memories and remnants of happiness until there is nothing but a rotting, festering decay that eats away all the goodness, all the light all the beauty of a soul that’s destroyed, leaving behind only unspeakable pain that no number of tears can ever soothe.

You’ll spend hours clutching at your center, trying to hold yourself together lest you fly apart and you lose all the delicate pieces that make up the fragile person you are. But it doesn’t matter, no one can see the cracks that spider web their way across every inch of you, no one sees the last of your humanity, the last of your ability to love seeping away from these small fissures in your soul. The emptiness is unrelenting as it carves you out until you’re nothing but a living doll. Hollow of everything that makes you human. An empty husk that retains enough muscle memory to make the lips smile, the vocal chords vibrate to create words and laughter. There will be just enough to trick people into thinking you’re alive when really you’re long since dead. The decay just hasn’t touched your skin yet.

There is no heart left to beat beneath the breast, no stomach left to take the bullshit that people seem to come up with. No lungs to breathe, just a hole that lets the wind rush through in a permanent exhalation. No soul left to tear apart, no spirit left to put truth behind the jokes and smiles. The eyes, those little doorways into the soul, will only lead you deep into the black hole that makes up this living-dead girl

Eventually you’re standing alone in the darkness, and all you want to do is end the pain. You don’t care how you do it, you don’t care who sees and who finds you. You’ve lost every ounce of heart, you’re not even human now, you’re half stone. The things like joy and love and tenderness are gone, replaced by unfeeling, uncaring stone.

To be touched by that emptiness is to have the death mark burned deep into the soul, forever changing the one marked by it.





Disturbed Mood:
The mood swings! Oh lord. The moods are intense and they come on like a monsoon. It is utterly exhausting. In the space of mere hours I have experienced the entire spectrum of human emotions. Shooting up and down at impossible speeds. Going from gleeful to suicidal in mere moments.

I’m sure you know as well as I do what it feels like to ride the highest highs, and crash to the lowest lows. And I’m sure it’s happened in fairly quick succession before at some point. Now if you can recall how harrowing and exhausting that was, pull that to the front of your mind and imagine if that were the case monthly, weekly, sometimes even daily. There are parts of it I don’t mind. It means that sometimes I can be dragged out of depression to carefree joy, but the dark side of it means that my good days can be dashed against the rocks as easily as causing a ripple in a pond.

Part of it is the lack of ability to maintain relationships. See, I guess the way I work is really different, and not in a good way. There will be an intense response to someone, some sort of idealization. And that high will last for awhile, a sort of hero-worship. But then something shifts. They do something, say something, forget something and it crashes down around the both of us. Suddenly they’re human, and imperfect and fallible and it causes a devaluation of them in my mind. I can only imagine how frustrating it is for them, but I know how it is for me. Because I hate the swings between black and white, good and evil, right and wrong. Friend and foe. Love and hate. This is called splitting. It’s a double edged sword. It serves a real purpose. In cases of abuse, for example. Let’s say there is a kid who is getting beat by the caretaker. But there are other times the caretaker is loving and caring. Splitting allows the brain to separate the two. There is the wonderful, loving, wholly good caretaker, and the evil, wicked one who is in no way attached to the good. Two totally differing beings.

Like the ‘I-Hate-You-Don’t-Leave-Me’ I touched on earlier. If you think about that statement in two parts, it’s like it was meant for two different people. I hate you. Don’t leave me. I hate the devalued part of you, because you make mistakes, you hurt me, you let me down (never mind the fact my expectations are nearly impossible to meet) and therefore I don’t like you anymore. But you’re now part of my life, and therefore you’re part of my identity. If you leave, I am disrupted. So I need you to stay. It’s a very complex web we weave, those of us who are BPD. We cannot escape our own entanglement.

I want to touch on rage here. Because that’s one of the things that people have the hardest time understanding. What was an annoyance for them resulted in a massive melt down for me. Its not anger, keep that in mind. It is rage. It is so unlike anger. Anger can adapt, it can be productive. Anger can be a tool. But not this rage. It is desperate, out of control. This rage is the type of thing that knows no words. Like a cornered beast, fighting for it’s life, uncaring to any damage it does to itself or the surroundings. It’s like a poison that swiftly boils through the body, destroying all that is good. It is a forest fire, a hurricane, a monsoon. It is unstoppable, unreasonable, it is like a force of nature that is trying to reside in fragile skin.

It’s unrelenting, it is unforgiving, it is uncaring. It will rip through me when I least expect it, when I don’t know what else to do. And it will over take me. I find myself burning in the flame of my own rage, hating everything. If I could harness the power of this rage and turn it towards something, I would be an unstoppable force of nature. But as it is, I live in chaos, waiting for the next time the tiger breaks loose and wreaks havoc on the world around me.



Disturbed Perception:
Oh the things stress can trigger in those of us who are Borderline. It’s so baffling. The two most frequent responses to stress are paranoia, the second is dissociation. This type of paranoia has no positive aspect to it. It’s nothing useful or even tolerable. It’s the type that tells you that everyone is plotting sinister things behind your back, and that you’re a horrible human being, one that doesn’t matter to anyone which is why they’re planning terrible things against you. When daily life gets too stressful, I find myself in a panic because I know without a doubt that I am alone in this world. That no one cares about me, that everyone is out to get me because I am a horrible, wretched human being. I find my self suspicious of everyone around me. I don’t trust anyone. No one is safe from these delusions. My mind finds things like lies or inaccuracies in everything people say, what they do. It will boil over with wild stories of what people are saying behind my back.

Often I find myself having to seek out reassurance. No, I’m not being cheated on, no my friends don’t hate me, no one important is out to get me, not everyone hates me, I’m really not all that bad of a person. It will be okay. I’m going to be fine.

It’s led me to do some horrible things. From sneaking in to people’s private belongings, to eavesdropping. Thankfully this is something I’ve gotten some control over. Its no longer an uncontrollable compulsion. Now its just a desire that I can almost always quash. Of course, whenever someone does something that might be considered an intentional slight to me, I find myself struggling with these issues all the more.

When the stress doesn’t trigger paranoia, it triggers the dissociation. We mentioned this very briefly earlier. But I’d like the chance to explain a few more things relating to my own personal brand of dissociation. As I said before, there are a few different levels of dissociation. When I “go away” into the womb of my soul, when I remember nothing, there is more then one set of traits that surface. Traits that are most assuredly not filtered through the personality of Ana. They’re almost like the distilled essence. Pure sexuality. Pure innocence. Pure rage. Pure joy. Pure cruelty. Pure tolerance. Pure violence. When all that is Ana goes away, the others come out to play. In all my reading and all the people I’ve spoken with I’ve found a few things.
1) This is called a multiplicity.
2) Most people with BPD don’t have one.
3) My unique blend of the two makes it a little bit like Dissociative Identity Disorder.
(And something I might touch on later. Not now though.)
It all boils down to a whole different set of problems that I get to deal with. But what I do share in common with everyone else is the loss of time, location, awareness and even my identity. What little of it I have.


Disturbed Behavior:
This is the one that people find to be the most controversial. And the hardest in some ways to accurately diagnose. See, the stress, or even the emptiness that we feel, results in impulsive behaviors, that can sometimes be quite extreme. Could be drugs, sex, eating, spending, driving…Anything that could potentially be harmful. Personally my flavor of impulse was spending. I used to be a true believer in the whole “retail therapy” thing. If I was upset, I’d get my papa to buy me something. Clothes, music, books, a movie…Things like that.

When the emptiness set in I could be a huge tease. My personal flavor of trauma kept it from ever reaching actual sex, but I was probably the bane of a few high school boys, causing more then enough frustration to last a lifetime. It’s how kisses ended up basically being party favors to me. I could kiss anyone and not have it mean anything else other then something nice, or affectionate. I love kisses. Not the healthiest habit, but hey. It happened.

I popped my fair share of pills too. Mainly painkillers. Morphine was my weakness, it could get me every time. A few times I did speed, but I had to hit a huge number to get the effect cause of my ADHD. It’d even me out, and then I’d have to take even more then that to get the high I needed. I also went through phases of eating issues. From binging to starving. It was always an attempt to control, to fill the void that throbbed right beneath my heart.

And when those impulses weren’t enough, I would cut.
It was the ultimate release of overwhelming emotions, the most eloquent expression of self-loathing, the cleanest display of rage, the most sincere punishment for my crimes and sins, and the only dependable anchor when I was empty, when I was numb to my own heartbeat. It was a ritual of reliving painful memories that festered in my injured soul, it was a way to block out things that I didn’t want to confront, a way to shelter myself from emotions I didn’t want to feel. It was so beautifully addicting. It’s something I still fight with. My arm is threaded with a hectic pattern of white scars, some slightly raised, some dimpled. All tell a story of a moment when I could not exist outside my own pain. When it was so extreme I thought my only choices were to bleed or die from my heart ripping it’s way out of my body. And I always chose to bleed. Because it was so much sweeter then the pain that clawed its way through each fiber of my being, eating away at every atom of my existence.
Suicidal thoughts and feelings. The desire to be dead (but not necessarily to die, mind) was in response to the sheer number of life crises I had, and continue to have. Peer rejection and bullying always make it that much worse. It isn’t so much the actual desire to be dead, but the pressing need to be protected from the unrelenting pain. The constant code red, the unending state of crisis. When we cannot die, we wound. We cope. We respond like wolves, we just curl up and wait to die, or to live. Because we suffer. We hurt. Inside our own skin we are in perfect, distilled agony.

These four groups of symptoms. Notice how the key word here is ‘disturbed’? I told you, medical terms lack compassion. That is the best I can do to explain the symptoms. These symptoms I’ve lived with for almost my whole life. But it’s only been about six years since I found out that my life will consist of these irrational mood swings, uncontrollable rage, crushing depression, whimsical flitting from one thing to the next, the self-injury, the lack of identity, a skewed sense of self, unstable relationships and an emptiness that will never go away for good.
Six years of struggling to find myself, to link myself to my own past. Six years of fighting to make and maintain relationships with family, friends, and romantically. Six years of finding a path to follow and changing my mind abruptly when I fall out of love with whatever idea I just had. Six years of having to be ashamed of my own weakness as I admit to another bout of self-injury. Six years of violent rages and depression so crushing I can’t get out of bed, can’t make myself shower, can’t even make myself eat. Six years of hours missing, of memories people share with my body but not with me. Six years of days spent reacting out of paranoia.

It seems so long, but it’s only about a quarter of my life that has an explanation for the emptiness so deep, so dark, so huge that I cannot escape it. Because I don’t even know who I am. But with each day since my diagnosis at least I’ve had the knowledge to know that I can keep moving forward.

Monday, June 21, 2010

Borderline Personality Disorder: A personal revolution

Borderline Personality Disorder
My diagnosis


(WARNING! There are some aspects about this post, and probably this whole blog, that will be triggering and not totally appropriate for children. Just saying.)

Teenagers are supposed to see themselves as invincible, perfect, creatures of infinite possibilities. At 15 years old, I’d lived my life in total chaos. At 15 years old I was sat down by my therapist, Dr. Katherine Handcock, with my anxious parents next to me, to listen to the three words that explained my past and destroyed my hopes and dreams in one fell swoop.

Borderline Personality Disorder.

Everything else faded into the background at that moment, as Dr. Handcock explained to us what that diagnosis meant. And with that, my life shifted. We had to find a new therapist, a specialist. My mother bought books that she frantically read, trying to gain some insight and understanding of me, her marked and permanently damaged child. My world was forever changed.

I would never “get better.”

This fate was overwhelmingly horrific. I was the odd little ‘goth’ girl who had always wanted to be accepted widely, if not universally. I wanted to be embraced for ideals, ideas, and thoughts that were unique. The one thing that can be said for me was that I was an odd little child, filled to the brim with thoughts of life as one might expect from Faerie, or Neverland, filled with universal love, adventures, the ability to be who you wanted to be that day, and someone else the next. I didn’t want to be pinned down by who I was. What I craved was the ability to glamour myself into someone new, whenever it was I felt like it. I wanted my whimsical nature and plans to be encouraged. All of that, I found out quickly, are common parts of Borderline. In fact, everything I had ever done wasn’t really me, it was a symptom of my mental disease.

Talk about a blow to an already fragile sense of identity, not to mention sense of originality. It seemed to me that I wasn’t a unique human being anymore, I was now part of a collective. I was part of a ‘terminal’ mental illness. Those first few months of specialized therapy with Dr. Sarah Marsh were the worst of my life.

Homework and books. Hours spent reading, writing, and looking into the reasons for my behavior. Everything about me that was different was swiftly explained to me in medical terms. If you aren’t already aware, medical terminology isn’t very compassionate. Personally, I feel like those formative years are, by far, the worst time to learn of something so world shattering. It wasn’t long before I was positive that whoever I had been no longer existed and, in fact, had never been real at all. It was as though I was a badly written character in a terrible story.

Everything gained a new, harsh face. My ritual of release, of taking the invisible emotional pain and making it physical, visible and ‘real’ had a new name, a title… ‘Self-Injury’, one of the cornerstone symptoms of Borderline Personality Disorder. Even my behavior towards my own my family, my friends… Now called ‘splitting’ and ‘I-Hate-You-Don’t-Leave-Me.’ And strangest to my, then teenage, mind, the concept of ‘intense and unstable interpersonal relationships.” These words took all my intense pain and turmoil and turned it into a science project.

Living with BPD, no matter your age, is harrowing and painful and extremely frustrating, in ways that others will never quite get, just like we don‘t understand how it is that they exist the way they do. We have all the empathy in the world, when we‘re in our good phases, but we can‘t ever understand what it is to live without our pain and our confusion and our fear. But I also had to learn that most of us don’t get diagnosed until adulthood, which was unsettling. Finding out from someone who is still practically a stranger that it isn’t like seasonal depression, that doesn’t ever go away…that was utterly heart breaking.

It was explained to me, finally, in a way I could understand. “Most depression is like a cold, or the flu. It comes and foes, but you can get better from it with the right medication. And when it comes back it is inevitability something slightly different. It will never be exactly the same. But Borderline, or any personality disorder, is more like cancer. It manifests in different ways. Very rarely, and only with some types, will there be a ‘cure.’ Most only have treatments. It will never go away, it doesn’t get fixed. In fact you should expect to have relapses and that hospitalizations are likely. You will most likely be Borderline for the rest of your life.” And with that my entire world came to a careening stop. I’m still not sure if it has ever recovered from that blow.

Surviving the storm: Living with Borderline.


Borderline: The sliver of emptiness where I exist. It’s tucked away somewhere between the total chaos of true insanity and the relative stability of neurosis.

For those of you who are fortunate enough to exist outside of this spectrum allow me to explain this statement. True insanity is, as my mother would say, doing the same thing over and over again and honestly expecting different results, because you’re that disconnected from reality. You’re lost in a whirlwind of colors and noises and pictures you can’t quite see, and it drives you to absolute madness. I’m sure you’ve experienced something like that…a noise that’s just beyond hearing teasing you until you want to scream. And neurosis, on the other side, for all that there are quirks and oddity, generally means you will respond to treatment and that you can mostly function like non-quirky people. You have longer, more frequent lucid moments then the insane counterpart. And me? I live somewhere between the two. Always have.

My childhood seems to me as if it were a series of snapshot moments, punctuated by trauma, rage, and loneliness. I was constantly finding myself locked in combat with everyone around me, while battling with everything inside of me. I was waging a hopeless war against my own emotions, my very existence. My parents didn’t know what to do with me anymore then I knew what to do with myself.

Being diagnosed with Borderline Personality Disorder was both a blessing and a cure. My otherness could be quantified, but it also meant that I was, and am, irrevocably damaged. My world went from endless possibilities to a narrow path that I will struggle along for the rest of my life.
Before the diagnosis changed my world entirely, I had assumed that once I’d confronted all the demons and monsters from my terror-struck and abused childhood I’d be heavily scarred, but totally functional just like everyone else.

How does one grow when the environment is incompatible? How do you live in a world that was created to hinder you at ever turn? Or, to be totally fair, how am I supposed to live and grow in this world when it seems as though I was created to live in a different way, in a different world? In a way I can compare it to a fey forced to live in our world, unable to return to the splendor and beauty of Faerie. It’d be Tinkerbell, never able to return to Neverland, the land of her birth and creation. Emotions, all the responsibilities, relationships, all the human interactions we experience every day. The ones we require to find a sense of well being and happiness… To live in this world, I must first become a living lie.

The hardest part of living with BPD is the ever present battle within my own soul. It’s almost as though to live I must constantly die. We all know that to be human is to change. To be unchanging is to be dead. It’s one of our species most admirable traits, the ability to adapt, to change. But for me, as a Borderliner it seems less like evolution and more like forced mutation, or as if I were losing myself to nothingness.

While watching my peers, my friends and my family, I find that I feel so stupid. They know how to connect to the people, the world, around them. They know how to live! When I see how effortless it appears for them to create and maintain relationships and general human contact, I feel so dumb. No one had to teach them how to live, or how to function. But not me. I had to learn to be empty so that professionals could fill me up with lessons, I had to let them take my mind apart so they could rewire all my thought processes, my very instincts, my reactions. They had to teach me how to feel, to connect, to respond in the correct manner. They had to build firewalls, and stop-gates. Things to keep me from behaving as I would normally. Because normal for me is unhealthy for the rest of the world.
There are things I have to think about that some others never even have to consider. I have to always be on guard, wonder if I am responding in an acceptable fashion, check to see if my emotions are my own or if they’re imitations of the emotions of other people around me. I constantly have to question my motives, my rationality, the logic of my choices and reactions, and a thousand other details that crowd my mind to keep me and my BPD in check.

After long, hard years of therapy, I’ve learned to cope as best as I can. I’ve had to learn how to act around other people, how to ‘fit in’ to the best of my ability. But most of it is just a front. Borderliners are the greatest actors of all. We don’t always know how to feel, how to act, how to behave. So, even though nothing has changed under the surface, I can take my cues and perfectly mimic relationships, desirable traits, normalcy, you name it…for a time, anyway. I wish people could understand that, you know? That no matter how hard I fight with it, no matter how long a period of time it is that I seem normal, or that I’m just an average young woman, I’m not. I don’t know when it’ll go away again. I can’t tell you when next I’ll be plunged into darkness and fire and chaos. I can’t give you a timeline, because so very often I’m the last one to know. I can’t tell that it’s shifting so much of the time. My Borderline is part of me, to an extent it is me. To me it is as normal as breathing. It’s how I lived. It’s my reality.

But those facts escape people’s minds so easily. They forget that I am different. They forget that I have to struggle to find something, in each and every day, that links me to the yesterdays gone by. Something that connects me to a past I don’t feel like I’m actually part of. I can never have the luxury of forgetting, even for an instant, that I live in a free fall. Completely disconnected from everything that grounds most people. When I feel depressed I can’t remember what it is to be happy. When a rage comes on, I can’t imagine ever being calm again because I don’t even know that word anymore. And when I’m hurt, when I feel betrayed, I swear I will never again trust anyone because time will never heal those wounds. I cannot recall my past on a whim. I remember my life mainly as one would remember a movie from their childhood, something that is hazy, separate, not of them. The only time that ever really changes is when I’m triggered, for good or bad, by something. Then the associated memories are released into me like a drug, filling my mind, my blood, my soul in an all consuming rush, just long enough for me to realize that it is mine, that I am real, no dream-thing from some warped mind, that I have a history that extends behind me, but just like that it is locked back into the recesses of my mind that I have such trouble getting to.

It is so lonely. Living trapped in this isolated realm. Feeling like I’m not real. Like I am a compilation of emotions that make no sense. I am a creation of every emotion I have ever absorbed and projected back onto people. I am the mold of every hand that has ever touched me, I am every name I have ever been called, I am every persona that people have offered to me, I am every role I have been given to play. I am like a shadow. I do not exist without the combination of two separate entities. When I am alone, I cease to be real.

There are many things that make me so I don't exist. Dissociation is the most distressing. I work hard to maintain control, but when I dissociate from myself I truly am not real. I can't always remember
my own actions. To behave differently but have no memory of your own actions...I do my best not to shirk my responsibility of my actions, even if I don't remember them. But sometimes it strikes me as very
unfair. There are, of course, varying degrees to dissociation. A mild form that leaves me feeling like my head is twenty feet above my body, swaddled in cotton, attached only by a thread. Or the types that feel
rather like a realistic dream, and you can't be sure what is true, the type where you auto pilot. And then there is the type where hours pass and I have no idea where they've gone or what I've done.

This is my life. Every second of every minute of every hour of every day of every year.